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|We are thrilled to report that Aaron received his transplant on January 3, 2012!|
When he was just 11 months old, Aaron saw a pulmonologist, who immediately sent him to the hospital by ambulance. He was diagnosed with pneumonia and admitted to the ICU for four weeks. His parents learned that Aaron was suffering from X-linked hyper-IgM immunodeficiency, a rare genetic disorder affecting his immune system. Doctors said a bone marrow transplant was critical to his survival.
Aaron is a happy 4-year-old who enjoys life; however his illness limits him from being around other children and adults except for doctors’ visits. Since receiving his transplant, he has experienced significant complications and is still not able to be around other children. Aaron loves to search the Internet looking for new recipes that he can help cook. He also makes his own meals in his pretend kitchen. When he is not cooking, Aaron is usually playing with his trains. Aaron is full of personality and laughter. His parents look forward to the day he can live normally and attend school. More than anything, they want their son to be able to play with other children, especially his cousins, whom he loves.
A bone marrow transplant costs approximately $300,000. And that's only the beginning. Even with health coverage, his family faces considerable medical expenses related to transplant. He requires monthly follow-up care and medications to ensure that his body accepts the new bone marrow.
Sadly, Aaron developed a life-threatening complication from his transplant called graft vs. host disease. Thankfully, there are treatment options, but the treatment requires Aaron and his family to drive 900 miles every three to four weeks to Cincinnati Children’s Hospital. With gas, hotels and hospital copays, each visit can cost more than $800. Aaron's mother and father take time away from work to make these trips, adding to the financial strain.
You can help by making a tax-deductible donation to NFT in honor of Aaron. If you'd prefer to send your gift by mail, please send it to the NFT Florida Transplant Fund, 5350 Poplar Avenue, Suite 430, Memphis, TN 38119. Please be sure to write "in honor of Aaron Wolsey" on the memo line.
Thank you for your generosity!
Patient Health Institute: Cincinnati Children's Medical Center