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Anya Maciulewski

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Transplant Type - Double-Lung

When Anya was 2, doctors discovered a brain tumor, which required chemotherapy. The following year, she underwent radiation to her head and spine. At ages 11 and 12, she successfully completed treatments for two more brain tumors.

In 2010, she was unable to breathe, and her parents rushed her to the ER, where she was put into a drug-induced coma. After eight weeks, she was able to return home, but later that year was hospitalized again for seven weeks, four of which she required life support. Sadly, the chemotherapy and radiation caused severe scarring of her lungs, leading to pulmonary fibrosis, acute respiratory distress syndrome and interstitial lung disease.

Doctors said a double-lung transplant is critical to her survival, and 31-year-old Anya received her transplant in November of 2013, just hours before requiring intubation once again.

Eight months after receiving her transplant, Anya and her mother, Nancee, were able to move back home to Michigan--450 miles away from the transplant center. While her lung function most likely will not improve anymore than her current capacity of 30 to 40%, Anya's loved ones are praying for great things!

Anya's balance and body are still weak, which limits her ability to function independently, and she has been having trouble with swelling and periodic hospital stays to receive diuretics and/or increase her O2 counts.

Back home in Michigan, she is getting back to life as it was before moving to Pittsburgh for the transplant. She is enjoying art, painting, loom knitting and other crafts when she is not in rehabilitation treatments. She is also enjoying quality time with her nieces, Rori and Julianna, who are the newest additions to their family!

The average double-lung transplant costs nearly $800,000. And that’s only the beginning. Although her health insurance will cover the transplant itself, she’ll still face expenses for follow-up care and daily anti-rejection medications for the rest of her life.

Because Anya and Nancee still must travel to Pittsburgh for check-ups and evaluations, they are reliant on donations for travel expenses, as well as her vital medications.

You can help by making a tax-deductible donation to NFT in honor of Anya. If you'd prefer to send your gift by mail, please send it to the NFT Michigan Transplant Fund, 5350 Poplar Avenue, Suite 430, Memphis, TN 38119. Please be sure to write "in honor of Anya Maciulewski" on the memo line.

Thank you for your generosity!

Patient Health Institute: *[University of Pittsburgh Medical Center|]*
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